Lately I have been getting a great deal amount of emails regarding “Hydroxyurea”. Do I take it? Are there side effects? What are my views on it? Well here is my opinion regarding, “Hydroxyurea”….
Yes I take it! And back in 1996 my oncologist put me on three pills a day and it made me so sick, throwing up, nausea, light head, so I stopped taking it! As for me that was a big mistake. I wish I would have kept taking it and just adjusted the doses but at the time I was going through escrow, my husband was very sick and later was diagnosed having a inoperable brain tumor, so I just threw those pills out! If I would have kept taking them my crisis would have become less often, and so would my pain and just maybe not so much damage to my kidneys. As of now my kidneys have sustained a great deal of damage from the sickled cells over the years along with my lungs. Just maybe my organs would be in better condition if I would have stayed with it.
Since I have been on Hydroxyurea I can tell my blood count has increased and my energy has gradually picked up. My fetal hemoglobin has increased and this summer I have had only one night of pain. Now prior to Hydroxyurea I was getting transfused every 2-3 months, my blood count would be 9.0 after a transfusion then drop down to 6.1- 5.9 in 2 to 3 months. As of now my count is holding steady at 8.1 and I am loving it.
I am no doctor but I strongly believe if I would have kept taking it back in 1996, I would have better “organ function” now. So I am a fan of Hydroxyurea and I will continue to take it.
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